seanan_mcguire: (knives)
[personal profile] seanan_mcguire
"Can I promise you that I'm going to get better? No. This is what you get, you know. This incomplete person, with toothbrushes, and with rubber gloves, and with so much love for you. But if that's not what you want, then you need to be honest with me, and with yourself. And the sooner the better." —Emma Pillsbury, Glee.

"When I was a kid, I always imagined I'd be normal by now." —Hannelore, Questionable Content.

Before I begin, I want to make it clear that this is not the first time I have talked about my OCD, and the way it impacts my life. I don't talk about it in depth all that often, because it's a daily thing for me. I'm not "normal" five days out of the week, and OCD on Mondays and Thursdays. I'm not cyclical. I am programmed in a way that doesn't quite fit the currently defined human median, and that's how I function all the time.

I started displaying signs of OCD when I was nine, although I didn't get formally diagnosed until I was nineteen. Because I'm not germaphobic (if anything, I'm virophillic) or a "cleaner," it was easy to write my insistence on following patterns and maintaining routines off as just one more aspect of me being a weird kid. And I was a weird kid, with or without the OCD. It's impossible for me to know who I would have been with a differently wired brain, but I like to think that I would have been a version of the self I am now. Just maybe one with a little less stuff, and a little less esoteric knowledge about bad B-grade horror movies.

My diagnosis was almost accidental. I was depressed; I went to see a doctor about my depression; one thing led to another; we arrived at a place that we both agreed matched up with the contents of my brain. (OCD is sometimes connected to depression. Hell, OCD sometimes causes depression, either because you can't keep up with your obsessions, or because your compulsions make you sad. I've had both these experiences. Neither is particularly fun.) I promptly told absolutely no one, because the OCD jokes were already common within my social circle, and I didn't want to deal. But I did start putting some basic coping strategies in place, and things got better. I didn't fly into a towering rage over people being late if we didn't set a start time. I learned to eat food without mashing it into an indistinguishable slurry. The beat went on.

As I've gotten older, my symptoms have matured with the rest of me, as have my coping strategies. I've finally reached the point where I can be less than two hours early for my flight, providing I have a printed boarding pass and priority boarding. I can travel with people who are more laid back than I am (although, to be fair, that's everyone). I can even go for dinner without having a pre-memorized menu (I don't get credit for this one; it turns out you can, with time, memorize a wide enough range of food combinations to be safe within a number of specific cuisines). And I mostly don't take it out on other people when things go wrong.

One in fifty Americans lives with OCD. I won't say "suffers from," because not all of us are suffering; I am not suffering. I am no more or less normal than anyone else. It's just that I start from a different position on the field. Some people with OCD do suffer, because it can be a crippling condition. It's the luck of the draw, the same as anything else.

The dominant idea of OCD is still Adrian Monk or Hannelore, or Emma from Glee. I've been in tears over her twice this season, because it breaks my heart a little when I see her struggling to control something she never asked for, never did anything to earn, and has to deal with all the same. Most people with OCD aren't these stereotypes. They're your friend who always has hand sanitizer, or your cousin who never leaves the house until seven minutes after the hour. They're the guy you went to college with who has a collection of lawn gnomes in his bathroom, and buys a new one every six months. They're your favorite football player. They're that composer you like.

They're me.

I made a comment on Twitter earlier today that I was an "odd duck," because I wanted to dance to a Ludo song at my wedding (no, one isn't planned, I just like to plan ahead). Celticora replied, "You're not an odd duck, you're a normal platypus." I think I'm going to roll with that. So the next time someone wants to be early, or can't leave the house without checking that the toaster is unplugged, or does something else you can't understand but that doesn't actually hurt you, remember, it's a big ecosystem. We have room for ducks and platypi.

Everybody loves a semi-aquatic egg-laying mammal of action, right?
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Date: 2012-01-25 06:16 pm (UTC)
From: [identity profile] filkertom.livejournal.com
[hugs] I suppose you could be an ugly duckling -- except, of course, you're actually pretty hot, so I can't wait to see what swan you grow up to be. :)

Date: 2012-01-25 06:30 pm (UTC)
From: [identity profile] seanan-mcguire.livejournal.com
Whatever swan I am, it's still gonna love you, buddy.

Date: 2012-01-25 06:21 pm (UTC)
sheistheweather: (Default)
From: [personal profile] sheistheweather
There is nearly always more room for understanding and compassion for one's fellow creatures in this world. Thank you for sharing this.

Date: 2012-01-25 06:24 pm (UTC)
From: [identity profile] geojlc.livejournal.com
Well put! Thanks for sharing that insight!

Date: 2012-01-25 06:30 pm (UTC)
From: [identity profile] seanan-mcguire.livejournal.com
It's occasionally fussy-making.
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Date: 2012-01-25 06:30 pm (UTC)
From: [identity profile] seanan-mcguire.livejournal.com
Very welcome.

Date: 2012-01-25 06:29 pm (UTC)
From: [identity profile] kippurbird.livejournal.com
I have similar sorts of issues because of my Asperger's syndrome. I'm high enough functioning that people don't realize it's there unless they really know me and I can get through the day without much impairment on my activities, but it's enough there that if someone drops something unexpected on me - like asking if I want to go to the movies with less than a day's notice and even if I had nothing planned for that day, I'll panic because it wasn't in my internal list of possibilities and I can't handle the change. Usually I'll end up saying no because it wasn't planned for and I don't have the mental time to change gears from "Doing nothing" to "Going to the movies".

A friend of mine said something similar about the duck vs platypus comment: she said that Asperger's people have QWERTY thoughts and not alphabetical thoughts because of the way we process information.

Date: 2012-01-25 07:12 pm (UTC)
beccastareyes: Image of Sam from LotR. Text: loyal (Default)
From: [personal profile] beccastareyes
I'm another Aspie and I'm the same way; it doesn't help that I also have an anxiety disorder that's triggered by crowds (among other things), so some of the planning time is mental preparation for being out in public.

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Date: 2012-01-25 06:40 pm (UTC)
From: [identity profile] khaybee.livejournal.com
Perhaps someday I will not need to be 2-3 hours early to the airport. I don't expect that day will be in this year.

Date: 2012-01-26 03:20 pm (UTC)
From: [identity profile] seanan-mcguire.livejournal.com
I can really only do it when I'm flying Virgin.

Date: 2012-01-25 06:40 pm (UTC)
From: [identity profile] vulpine137.livejournal.com
Hurrah for platypi.

Date: 2012-01-26 03:20 pm (UTC)

Date: 2012-01-25 06:52 pm (UTC)
From: [identity profile] ravens-shadow.livejournal.com
Any day that brings along a reference to platypi, especially ones of action, is a good day.

Also, your comment about 'your favorite football player' reminded me of this USA network show, "Necessary Roughness," about a psychologist who starts treating football players. One episode is centered on a guy with OCD that has gotten increasingly maladaptive. Still, of course, the more extreme side of disorders, but at least it shows a variety of people. You can't look at someone and always tell they are living with something like OCD.

Date: 2012-01-26 03:21 pm (UTC)

Date: 2012-01-25 07:01 pm (UTC)
From: [identity profile] jennifer wiewel westberg (from livejournal.com)
Thank you for the reminder that different is wonderful! I will use the opportunity to once again tell my children that being unique is a blessing and that we never know what someone else might be dealing with on the inside or the outside.

Date: 2012-01-26 03:21 pm (UTC)

Date: 2012-01-25 07:05 pm (UTC)
From: [identity profile] coyotegoth.livejournal.com
This makes sense to me- here's to 2013 being the Year of the Platypus.

Date: 2012-01-26 03:21 pm (UTC)
From: [identity profile] seanan-mcguire.livejournal.com
I approve of this year.

Date: 2012-01-25 07:06 pm (UTC)
From: [identity profile] wfw-sj.livejournal.com
Bless you, and I'm very happy that you've found most of yourself, and that you continue to find yourself. I'm still struggling with finding satisfaction in a world where there isn't a place for me to fit in. I don't want to change, yet I wish that there was a place.

Date: 2012-01-26 03:21 pm (UTC)
From: [identity profile] seanan-mcguire.livejournal.com
You'll get there.

Date: 2012-01-25 07:12 pm (UTC)
From: [identity profile] lysystratae.livejournal.com
Platypus... i likes it

Date: 2012-01-26 03:21 pm (UTC)

Date: 2012-01-25 07:13 pm (UTC)
From: [identity profile] admnaismith.livejournal.com

It could be a lot worse. You could be a normal person. And we all know what assholes they are.

For most of us, that thing that people call a "maladjustment", is the very thing that makes us Awesome.

A lot of my lousy childhood was due to the way I was ashamed and sensitive about my "maladjustment", and the way I let the bullies get under my skin about it. Once I decided to wear my "maladjustment" as a badge of honor, to revel in it, to have fun being who I was, not only did the bullies fail to get at me, a good many of them no longer wanted to. The difference between being a misfit and a cool kid is often attitude. I wish more of us learned that at an early age.

Your mind, personality, identity, self is a creation of great beauty and power, and I'm proud to consider myself as one blood with you.

Date: 2012-01-26 03:21 pm (UTC)

Date: 2012-01-25 07:15 pm (UTC)
From: [identity profile] lauowolf.livejournal.com
Lots of depression in my family, mostly undiagnosed - If you don't name it, it isn't there, right?
My aunt, though, had shock treatment at Napa in the 60's and came out of it with a Certificate of Normalcy.
"I bet you don't have one of these!"
True, that.
I'm not exactly a normal person, although I play one in everyday life.

OCD?
I suspect so.
Mostly it's hiding behind acceptable levels of rigidity, and general nerdy stereotypes, and a tendency for people to become engineers.
And everyone in sight has either serious clutter issues or utter empty sterility, so structurally the same issue, some kind of bad relationship with stuff.
(But really, sticking my visiting teenaged daughter out in the backyard in a tent - in the winter - because she couldn't be put in the "guest" room?
That seems like some kind of red flag for a serious over-concern with people not touching your things? Just saying. Not that there's anything wrong with that....)

In any case, me, I've always suspected that normal is overrated.
It seems to me that the spectrum of possible human types has perhaps been of functional value in different circumstances.
You'd probably make one heck of a flint tool.
Perhaps this is more so with the OCD than the depression, though, since depression hurts.

I'd add to the list of quotations the bit from Annie Hall:

[Alvy addresses a pair of strangers on the street]
Alvy Singer: Here, you look like a very happy couple, um, are you?
Female street stranger: Yeah.
Alvy Singer: Yeah? So, so, how do you account for it?
Female street stranger: Uh, I'm very shallow and empty and I have no ideas and nothing interesting to say.
Male street stranger: And I'm exactly the same way.

Though this, of course, could just be sour grapes on my part.

Date: 2012-01-26 03:22 pm (UTC)
From: [identity profile] seanan-mcguire.livejournal.com
Sometimes sour grapes are delicious.

Date: 2012-01-25 07:15 pm (UTC)
From: [identity profile] noelove.livejournal.com
came over form Twitter and got teary with "You're not an odd duck, you're a normal platypus." What a wonderful, wonderful thing for your pal to say.

also, busted a gut laughing at "Everybody loves a semi-aquatic egg-laying mammal of action, right?"

yes yes we do!!!

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Date: 2012-01-25 07:23 pm (UTC)
beccastareyes: Image of Sam from LotR. Text: loyal (Default)
From: [personal profile] beccastareyes
My little brother has OCD (and autism, which is one reason he wasn't diagnosed with OCD until high school -- he wasn't a hand-washer or a cleaner either, and the autistic need for structure and sensory issues* overlaps with his OCD). I also got the autistic spectrum + anxiety disorder, though the anxiety only got bad enough for an actual diagnosis beyond 'high strung' in grad school. When my brother found out, I think he was reassured that his cool older sister, who was also weird but seemed to have it much easier than him, also needed to do things to take medicine to help control things like 'I know the flight time, right? Better check again...'**

Thank you for being open about it. It helps remind those of us who feel like odd ducks that there's a whole population of platypi that we fit in pretty well with.

* Especially with food. Everything had to be on a separate plate, and when we went out to restaurants, the food couldn't come with anything Ben wasn't going to eat (cole slaw, pickles, applesauce), even if it was in its own cup and not touching the food.

** My least favorite thing about early flights; my sleep is always horrible before them because of this, despite having text messages and emails and alarms and everything to make sure I get to the airport on time. And it's only early flights from home: if I can get up at 7 AM (or later) for them or am with someone (or at a hotel), I'm fine***. My brain is a weird place...

*** Despite the fact the two times I've shown up late to an airport and missed my flight, I was flying to home, not from it. Go figure.

Date: 2012-01-26 03:23 pm (UTC)
From: [identity profile] seanan-mcguire.livejournal.com
High-five to your little brother! And to you.

<3

Date: 2012-01-25 07:36 pm (UTC)
From: [identity profile] ladymondegreen.livejournal.com
Watching you deal with your OCD helped me figure out that I had it too and helped me watch for triggers and patterns that were forming in addition to things I knew about. Seeing how you dealt with it has been inspirational. Thank you!

Date: 2012-01-26 03:23 pm (UTC)
From: [identity profile] seanan-mcguire.livejournal.com
Very welcome.

Date: 2012-01-25 07:42 pm (UTC)
madfilkentist: My cat Florestan (gray shorthair) (mokka2)
From: [personal profile] madfilkentist
As you say, people come in different flavors. It bothers me when every deviation from the norm is considered a "syndrome" or "disorder." "Normal" people can be quite messed up, too, but we don't make a diagnosis of it since it's ... normal. I think there should be a diagnosis of "White Queen Syndrome," meaning a tendency to believe impossible things; but at least 75% of the population has it, so it's not called a syndrome.

Date: 2012-01-26 03:45 pm (UTC)
From: [identity profile] seanan-mcguire.livejournal.com
"Normal" is defined by the group with the largest number of members.

Date: 2012-01-25 07:46 pm (UTC)
From: [identity profile] queenoftheskies.livejournal.com
Thank you for sharing your thoughts and your victories. Right now, I'm trying to help my 26 year-old son through some anxieties and depression that we think might be OCD or Asperger's related, and it helps a lot to hear your relationship with the OCD.

Date: 2012-01-26 03:46 pm (UTC)
From: [identity profile] seanan-mcguire.livejournal.com
It's part of who I am. If he has OCD or Aspergers, that's part of who he is. And he will always be amazing.

Date: 2012-01-25 07:52 pm (UTC)
anne_d: (Susan)
From: [personal profile] anne_d
That's beautiful, and you are a fine and lovely platypus.

ETA: I always leave very early for appointments, and bring a book in case I have to wait. Doesn't everyone?
Edited Date: 2012-01-25 08:22 pm (UTC)

Date: 2012-01-26 01:56 am (UTC)
From: [identity profile] peachtales.livejournal.com
<3 the icon.

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Date: 2012-01-25 07:57 pm (UTC)
From: [identity profile] emmasee100.livejournal.com
"Everybody loves a semi-aquatic egg-laying mammal of action, right?"

And, the platypus has poisonous spurs, as well. Very apt! (Hi, I'm Australian, it's Australian, we all make a hobby of knowing which things are going to kill you. Tip for non-Aussies: most of them.)

Date: 2012-01-25 09:56 pm (UTC)
From: [identity profile] catsittingstill.livejournal.com
Well I wouldn't grab a platypus anyway; it is rude to touch a stranger without express permission.

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Date: 2012-01-25 08:25 pm (UTC)
ext_156915: (Default)
From: [identity profile] adelheid-p.livejournal.com
*hugs* I don't think I'm OCD but I know I have friends who are. I'd like to think that, for the most part, I'm patient with them. You've just reminded me of the movie "As Good As It Gets" where Jack Nicholson plays a person with extreme OCD. I think it was a good view of how many people struggle with it. I'm glad you've found a way of living and managing it. Have you ever read The Bloggess (http://thebloggess.com/)? She is also someone who has come out as having OCD besides extreme social anxiety and occasional bouts of severe depression. I find her very inspiring.

I hope you are a furiously happy platypus!

Date: 2012-01-26 03:47 pm (UTC)
From: [identity profile] seanan-mcguire.livejournal.com
I am! And I have read her; she is lovely.

Date: 2012-01-25 08:38 pm (UTC)
From: [identity profile] cleothyla.livejournal.com
Everybody loves a semi-aquatic egg-laying mammal of action, right?

And has sharp poisonous spines that will get you if you're not careful.
That is why I love your work.

Date: 2012-01-26 03:47 pm (UTC)

Date: 2012-01-25 08:42 pm (UTC)
avram: (Default)
From: [personal profile] avram
Ah, just think: If you were male, you'd have poisonous spurs.

Date: 2012-01-26 03:47 pm (UTC)

Date: 2012-01-25 08:46 pm (UTC)
From: [identity profile] martianmooncrab.livejournal.com
there is an entire flock of odd ducks... quack....

Date: 2012-01-26 03:47 pm (UTC)
From: [identity profile] seanan-mcguire.livejournal.com
Get the stale bread!
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