T-minus 23 days to DEADLINE.
May. 10th, 2011 11:36 am[NOTE: I am a few days behind, due to the convention I attended this past weekend. So I'll be posting several of these today. Please don't tell me how it's not spam.]
Denver, Colorado. June 13th, 2014.
Suzanne Amberlee had been waiting to box up her daughter's room almost since the day Amanda was diagnosed with leukemia. It was a coping mechanism for her. Maybe some would call it morbid, the way she spent hours thinking about boxes and storage and what to do with the things too precious to be given to Goodwill, but as the parent of a sick child, she'd been willing to take any comfort that her frightened mind could give her. These were the things she would keep; these were the things she would send to family members; these were the things she would give to Amanda's friends. Simple lines, long-since drawn in the ledgers of her heart.
The reality of standing in her little girl's bedroom and imagining it empty, stripped of all the things that made it Amanda's, was almost more than she could bear. After weeks of struggling with herself, she had finally been able to close her hand on the doorknob and open the bedroom door. She still wasn't able to force herself across the threshold.
There were all Amanda's things. Her stuffed toys that she had steadfastly refused to admit to outgrowing, saying they had been her only friends when she was sick, and she wouldn't abandon them now. Her bookshelves, cluttered with knick-knacks and soccer trophies as much as books. Her framed poster showing the structure of Marburg EX19, given to her by Dr. Wells after the first clinical trials began showing positive results. When she closed her eyes, Suzanne could picture that day. Amanda, looking so weak and pale, and Dr. Wells, their savior, smiling like the sun.
"This little fellow is your best friend now, Amanda," that was what he'd said, on that beautiful afternoon where having a future suddenly seemed possible again. "Take good care of it, and it will take good care of you."
Rage swept over Suzanne as she opened her eyes and glared across the room at the photographic disease. Where was it when her little girl was dying? Marburg EX19 was supposed to save her baby's life, and in the end, it had let her down; it had let Amanda die. What was the good of all this—the pain, the endless hours spent in hospital beds, the promises they never got to keep—if the damn disease couldn't save Amanda's life?
"I hate you," she whispered, and turned away. She couldn't deal with the bedroom; not today, maybe not ever. Maybe she would just sell the house, leave Amanda's things where they were, and let them be dealt with by the new owners. They could filter through the spindrift of Amanda's life without seeing her face, without hearing her voice talking about college plans and careers. They could put things in boxes without breaking their hearts.
If there was anything more terrible for a parent than burying a child, Suzanne Amberlee couldn't imagine what it would be. Her internal battle over for another day—over, and lost—she turned away, heading down the stairs. Maybe tomorrow she could empty out that room. Maybe tomorrow, she could start boxing things away. Maybe tomorrow, she could start the process of letting Amanda go.
Maybe tomorrow. But probably not.
Suzanne Amberlee walked away, unaware of the small viral colony living in her own body, nested deep in the tissue of her lungs. Content in its accidental home, Marburg EX19 slept, waiting for the trigger that would startle it into wakefulness. It was patient; it had all the time in the world.
***
Amanda Amberlee is survived by her mother, Suzanne Amberlee. In lieu of flowers, the family asks that donations be sent to the Colorado Cancer Research Center...
When will you Rise?
Denver, Colorado. June 13th, 2014.
Suzanne Amberlee had been waiting to box up her daughter's room almost since the day Amanda was diagnosed with leukemia. It was a coping mechanism for her. Maybe some would call it morbid, the way she spent hours thinking about boxes and storage and what to do with the things too precious to be given to Goodwill, but as the parent of a sick child, she'd been willing to take any comfort that her frightened mind could give her. These were the things she would keep; these were the things she would send to family members; these were the things she would give to Amanda's friends. Simple lines, long-since drawn in the ledgers of her heart.
The reality of standing in her little girl's bedroom and imagining it empty, stripped of all the things that made it Amanda's, was almost more than she could bear. After weeks of struggling with herself, she had finally been able to close her hand on the doorknob and open the bedroom door. She still wasn't able to force herself across the threshold.
There were all Amanda's things. Her stuffed toys that she had steadfastly refused to admit to outgrowing, saying they had been her only friends when she was sick, and she wouldn't abandon them now. Her bookshelves, cluttered with knick-knacks and soccer trophies as much as books. Her framed poster showing the structure of Marburg EX19, given to her by Dr. Wells after the first clinical trials began showing positive results. When she closed her eyes, Suzanne could picture that day. Amanda, looking so weak and pale, and Dr. Wells, their savior, smiling like the sun.
"This little fellow is your best friend now, Amanda," that was what he'd said, on that beautiful afternoon where having a future suddenly seemed possible again. "Take good care of it, and it will take good care of you."
Rage swept over Suzanne as she opened her eyes and glared across the room at the photographic disease. Where was it when her little girl was dying? Marburg EX19 was supposed to save her baby's life, and in the end, it had let her down; it had let Amanda die. What was the good of all this—the pain, the endless hours spent in hospital beds, the promises they never got to keep—if the damn disease couldn't save Amanda's life?
"I hate you," she whispered, and turned away. She couldn't deal with the bedroom; not today, maybe not ever. Maybe she would just sell the house, leave Amanda's things where they were, and let them be dealt with by the new owners. They could filter through the spindrift of Amanda's life without seeing her face, without hearing her voice talking about college plans and careers. They could put things in boxes without breaking their hearts.
If there was anything more terrible for a parent than burying a child, Suzanne Amberlee couldn't imagine what it would be. Her internal battle over for another day—over, and lost—she turned away, heading down the stairs. Maybe tomorrow she could empty out that room. Maybe tomorrow, she could start boxing things away. Maybe tomorrow, she could start the process of letting Amanda go.
Maybe tomorrow. But probably not.
Suzanne Amberlee walked away, unaware of the small viral colony living in her own body, nested deep in the tissue of her lungs. Content in its accidental home, Marburg EX19 slept, waiting for the trigger that would startle it into wakefulness. It was patient; it had all the time in the world.
***
Amanda Amberlee is survived by her mother, Suzanne Amberlee. In lieu of flowers, the family asks that donations be sent to the Colorado Cancer Research Center...
When will you Rise?